Clinical Research Oriented Workshop (CROW) Meeting: Sept 21, 2023

 

Present:   Justine Dee, Nancy Gell, Juvena Hitt, Amanda Kennedy, Jerry Landau, Ben Littenberg, Jen Oshita, Liliane Savard, Adam Sprouse Blum, Connie van Eeghen (10)

 1.                   Warm Up: Liliane may have sold her house! (which is why she is calling in from her car)

2.                   Liliane’s HCT Article and HCT Poster for the Health Equity Summit and a draft article on our healthcare transition project. The target journal is the Journal of General Internal Medicine.

a.       Liliane is not too happy with the introduction so some advice on cleaning up the message here would be helpful. But the main issue is to cut it from 5800 words down to 4000.

                                                   i.      Using a bird's eye view, what appears redundant or unhelpful in supporting the message around the gaps in research to address healthcare transition here in Vermont?

b.       Poster:

                                                   i.      A lot of text conveying many themes and subthemes; what’s most critical for your message

                                                 ii.      List the 8 themes; pick one

1.       Identify the actionable lessons

                                               iii.      Suggest removing the pie chart, unless needed for the audience

                                               iv.      Emphasize the message: supporting the transition is bigger than just thinking about transition. It requires training, accessibility, HC system supports… (the themes)

                                                 v.      Define accessibility to include communication; consider “sensory accessibility”

                                               vi.      How does each element support HCT

                                              vii.      Use acronyms to maximize efficiency

                                            viii.      Standardize formatting; choose one or two quotes

c.       Paper

                                                   i.      Make the 8^th theme the conclusion – reorganize

                                                 ii.      [More that the recorder missed due to a conflict!]

3.                   Schedule for rest of the month:

a.       TBD

Recorded by: CvE

FW: Clinical Research ECHO

Not sure if this will be any good, but it has potential.  FYI.

 

Ben

 

From: NNE-CTR_Members <NNE-CTR_MEMBERS@list.uvm.edu> On Behalf Of Clifford-Bova, Sheila A
Sent: Thursday, September 7, 2023 12:31 PM
To: NNE-CTR_MEMBERS@LIST.UVM.EDU
Subject: Clinical Research ECHO

 

We invite you to register for the NNE-CTR Clinical Research ECHO!

 

Beginning its third season, the Clinical Research ECHO series focuses on all types of clinical research including investigator-initiated projects, with the goal of helping researchers access current resources, evaluate the feasibility of research ideas, and choose the appropriate research type and study design.

 

Sessions will occur on the fourth Wednesday of each month from 12-1pm via Zoom from September 2023-May 2024.

 

Topics covered this year will include qualitative research design, team science, research with special patient populations, and designing a randomized clinical trial.

 

This ECHO is open to all Northern New Englanders!

 

To register for this series, please click here https://nam02.safelinks.protection.outlook.com/?url=https%3A%2F%2Fapp.smartsheet.com%2Fb%2Fform%2Fb09f772afeea414caf1bbc207163d34e&data=05%7C01%7Csheila.clifford-bova%40med.uvm.edu%7Cfdcbb6540f674bdfe0e308dbafbea855%7Ced03ff7aba9f420480a6b226316c919d%7C0%7C0%7C638297005640496094%7CUnknown%7CTWFpbGZsb3d8eyJWIjoiMC4wLjAwMDAiLCJQIjoiV2luMzIiLCJBTiI6Ik1haWwiLCJXVCI6Mn0%3D%7C3000%7C%7C%7C&sdata=tKm7792SrKXl4V3lPBAiu59KUBlIVW5dxxQ08b6kmLg%3D&reserved=0

 

Brought to you by the Northern New England Clinical & Translational Research Network Professional Development and Community and Engagement Outreach Cores via MaineHealth Project ECHO.

 

CME credits are available!

 

Clinical Research ECHO HUB Team

Ivette Emery, MaineHealth

Kimberley Luebbers, University of Vermont Carrie Sullivan, MaineHealth Nancy Kaplan, University of Vermont

 

For more information, contact Meredith Oestreicher at Meredith.Oestreicher@MaineHealth.org

 

Project ECHO® (Extension for Community Healthcare Outcomes) is a forum for delivering high-quality specialty care to underserved communities. Through monthly Zoom sessions on a variety of specialty care topics, members connect for didactic presentations and case discussions.

 

 

 

Sheila Clifford-Bova

NNE-CTR Administrative Program Manager

 

 

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Clinical Research Oriented Workshop (CROW) Meeting: July 13, 2023

 

Present:   Justine Dee, Nancy Gell, Juvena Hitt, Amanda Kennedy, Jerry Landau, Ben Littenberg, Jen Oshita, Adam Sprouse Blum, Connie van Eeghen (9)

 1.                   Warm Up: Jen’s defense date is Sept 8!

2.                   Jen’s Scoping Review Intro and Methods entitled: “Accommodations Facilitating Effective Communication for Adults with Communication Disabilities in Healthcare”

a.       Title: good

b.       Co-authors: consider library specialists as potential co-authors, as a reminder

c.       Intro

                                                   i.      Check source for US adult pop statistics

                                                 ii.      Is there a standard definition for CDs (communication disabilities)?

                                               iii.      Define “inadequate communication”

                                               iv.      Consider reorganizing the Intro sequence:

1.       Current: Federal regs and standards, then effect on population, then effect on healthcare communication

2.       Consider: reversing this order

                                                 v.      Consider tightening language (examples given in discussion)

                                               vi.      Couch declarative statements in keeping with sources and to support the purpose of a scoping review, which is meant to identify the evidence that exists so far in terms of accommodations that are being studied

                                              vii.      Consider whether to include results of the identified studies, which will help support the eventual Discussion section. Is a table that reports each source essential?

1.       The purpose of this study is for health care orgs to know what accommodations have been studied and for which populations, and to show the need for more rigorous studies.

2.       Overall, a few studies were RCTs, one of which was very strong.  “Here is the literature, with 3 RCTs and 38 weak studies.”  Look at the 3 strong studies in depth as a review of what we know so far. Discussion: “Do fewer lousy studies and more RCTs!”  And add solutions for how to do better studies, such as combining efforts across institutions and networks.

d.       Methods

                                                   i.      Summarize the key search terms

                                                 ii.      Covidence 2023 is a platform that accepts Endnote citations and assigns literature sources are distributed equally, tracks reviews, eliminates duplicates, flags discrepancies between reviewers, allows extractions – has data management features that are handy; available at UVM

                                               iii.      Save results for Results!

3.                   Schedule for rest of the month:

a.       July 20 - TBD

 

Recorded by: CvE