Clinical Research Oriented Workshop (CROW) Meeting: January 28, 2021

 

Present:   Levi Bonnell, Marianne Burke, Justine Dee, Nancy Gell, Juvena Hitt, Emily Houston, Rocky Kelley, Ben Littenberg, Jen Oshita, Connie van Eeghen, Mariana Wingood, Charlie MacLean (12)

 

1.                   Warm Up: Covid vaccination time with various side effects

2.                   Connie: JGIM outline about building capacity for patient engagement

a.       Charlie: how to recruit patient partners in research; describe how health care organizations do this routinely

                                                   i.      How do they do it; include in background as context and to compare/contrast

b.       Nancy: make it clear the audience is researchers

                                                   i.      Be ready to cull

c.       Rocky: it reads about recruitment

                                                   i.      If this is about engagement for research teams

                                                 ii.      Message: patient partners are enthusiastic, they care, they want to participate

1.       Engagement is not an accident, it is not hard, it is systematic

d.       Jen O: is this a process description?

e.       Ben: notes from the field: our approach to …

                                                   i.      People are starting to do it, here’s a reasonable approach, next year we’ll know more

f.        Nancy: I know this is important already; don’t talk the PCORI line

                                                   i.      Describe the how to: what do I do

g.       Charlie: yes, this is how we’ve done it

                                                   i.      You’ve brought your experience of toolkit approach, centered around patients

                                                 ii.      This systematic approach will help others move ahead

h.       Ben:

                                                   i.      There are 5-10 barriers that teams perceive

                                                 ii.      We have a toolkit addresses those barriers

1.       Patients and providers care about the same thing

2.       You can solve them this way

i.         Charlie: missing from background: what is the role of financial incentives

j.         Rocky: when identifying the barriers – relate to lit

                                                   i.      Rocky will look for past paper on barriers

1.       Having a team before there is funding – policy related issues

2.       Discussion: PCORI needs to fund this better

k.       Marianne: read pretty well

                                                   i.      Program description – like methods

1.       Description of virtual environment in Settings

                                                 ii.      Program evaluation- outcomes

                                               iii.      Settings: two phases go into program description

                                               iv.      Aims of recruitment and engagement tool

l.         “Multi-stakeholder team” does not translate well

                                                   i.      Generalizable tool for future research teams

1.       First step is to identify their stakeholders

m.     CONSORT

                                                   i.      What was the goal for provider and why so low

                                                 ii.      Covid was a factor… just one line

n.       Authorship

                                                   i.      Intellectual contribution and review the article

3.                   Next week:  Justine Dee