NCHS Upcoming Webinar: Reporting on the Nation’s Health in Health, United States

Date and Time: Thursday, March 4, 2021 at 2 pm EST.

To register: https://cdc.zoomgov.com/webinar/register/WN_FEeFLvH3S6mVlsuvbW6dSQexternal icon

Description: The Health, United States report series features national trends in health status and determinants, health care utilization, health care resources, and health care expenditures and payers from a variety of data sources. The latest Health, United States report for the President and Congress, to be released on March 2, 2021, provides relevant data to policymakers and public health professionals to inform evidence-based decisions. This National Center for Health Statistics webinar will summarize key findings from the report, review tools for using the data in health disparities research, and update viewers on program modernization efforts.

Adam Sprouse-Blum on "Across the Fence"

Across the Fence, UVM Extension's long-running TV show featured Adam Spouse-Blum, Assistant Professor of Neurology and PhD candidate, talking about Migraine. Adam goes over the basics of Migraines and other headaches, modern treatments, and his ongoing research. The whole 13-minute interview by Fran Stoddard is available on YouTube: https://youtu.be/LCHTcw97l_M

 

FW: March 2021 Educational Opportunity through the Research Protections Office

 

From the Research protections office   Committee on Human Research in the Medical Sciences March 2021 - New EDUCATIONAL Opportunity The RPO office is happy to offer training opportunities that will support both new and seasoned PI's, research coordinators, nurses and staff.  Please RSVP to mlocher@uvm.edu to receive a link to the meeting. Tuesday March 16 from 10:00-11:00AM via Microsoft Teams "Obtaining and Documenting Informed Consent of Non-English Speaking Research participants"   Melanie Locher, B.S., CIP Assistant Director of Monitoring and Education UVM Research Protections Office 211F Waterman Building Burlington, VT 05401 P: (802) 656-5249 E: Melanie.Locher@uvm.edu

 

ACS 5-Year PUMS available, New Data, Working Paper Series

IPUMS Census and Survey Data                                                        View this email in your browser Dear Benjamin, We are pleased to announce the release of the 2019 5-year ACS/PRCS PUMS data in IPUMS USA, the latest monthly data and additional 2019 supplement data from IPUMS CPS, newly available service delivery point data from IPUMS PMA, and the freshly minted IPUMS Working Paper Series. Read on to learn more.      DATA RELEASES IPUMS USA IPUMS USA released the 2019 5-year ACS/PRCS PUMS data this past week. Details about the new samples and other changes to IPUMS USA data can be found in our revision history.  IPUMS CPS IPUMS CPS has released data from the January 2021 basic monthly survey, supplemental COVID-19 variables from December 2020, as well as the Education and Computer and Internet Use supplements from 2019. Unharmonized variables are now available for ASEC samples from 2011-2020. IPUMS GLOBAL HEALTH IPUMS PMA just released 5 service delivery family planning surveys from 2019 and 2020 as well as select variables for the 2019 Uganda person-level family planning survey. The new service delivery samples cover Burkina Faso, Democratic Republic of the Congo, Ethiopia, Kenya, and Nigeria and include new variables on the reason for contraceptive stockouts and other topics.         INTRODUCING THE IPUMS WORKING PAPER SERIES We are proud to introduce the IPUMS Working Paper Series. The series aims to provide a deep dive into the methods, features, and applications of IPUMS data. The inaugural papers in the collection describe: Infrastructure for harmonizing international census microdata  Extending CPS linkages to include the 1976-1988 period  Linking individuals across U.S. censuses Collaborative efforts between IPUMS and genealogical organizations to produce full-count U.S. census microdata for research      Stay safe, and use it for good! The IPUMS Team     NEW BLOG POST   MAPPING BLOCK-LEVEL SEGREGATION: THE TWIN CITIES' BLACK POPULATION 1980-2010     IPUMS.ORG | University of Minnesota     Copyright © 2020 University of Minnesota, All rights reserved. Our mailing address is: IPUMS 225 19th Ave South Minneapolis, MN 55455

Workshop Registration is now open for the upcoming VIRTUAL MEPS Three-day Data Users' Workshop on March 16-18, 2021.

For registration and more information, visit the Workshops & Events page on the MEPS Web site at: https://meps.ahrq.gov/mepsweb/about_meps/workshops_events.jsp

Crocker leads pub;ication of major paper on methods for large PCORI-frunded study

Abigail M Crocker, PhD, Assistant Professor led a large team of collaborators from around the country in publishing the methods from the 5-year $18.3 million study on Integrating Behavioral health services in primary care practices. Congratulations, Abby!
 

Abigail M Crocker, PhD; Rodger Kessler, PhD; Constance van Eeghen, DrPH; Levi N Bonnell, MPH; Ryan E Breshears, PhD; Peter Callas, PhD; Jessica Clifton, PhD; William Elder, PhD; Chet Fox, MD; Sylvie Frisbie; Juvena Hitt; Jennifer Jewiss, EdD; Roger Kathol, MD; Kelly Clark/Keefe, EdD; Jennifer Lavoie; George S Leibowitz, PhD; CR Macchi, PhD; Mark McGovern, PhD; Brenda Mollis, MPH MPA MA; Daniel Mullin, PsyD MPH; Zsolt Nagykaldi, PhD; Lisa Watts Natkin, PhD; Wilson Pace, MD; Richard G Pinckney, MD MPH; Douglas Pomeroy; Alexander Pond; Rachel Postupack, PhD; Paula Reynolds; Gail L Rose, PhD; Sarah Hudson Scholle, DrPH MPH; William J Sieber, PhD; Terry Stancin, PhD; Kurt C Stange, MD PhD; Kari A Stephens, PhD; Kathryn Teng, MD; Elizabeth Needham Waddell, PhD; Benjamin Littenberg, MD (in press). Integrating Behavioral Health and Primary Care (IBH-PC) to improve patient-centered outcomes in adults with multiple chronic medical and behavioral health conditions: study protocol for a pragmatic cluster-randomized control trial. Trials. Accepted for publication 15 February 2021, PREPRINT (Version 1) available at Research Square https://doi.org/10.21203/rs.3.rs-54202/v1
 

CTS alumna Marianne Burke published her experiences with open-data sharing

 

Congratulations to Marianne D. Burke, PhD, MA, AHIP, Associate Professor Emerita for her publication in  Hypothesis: The Journal of the Medical Library Association Research Caucus.

Burke, M. D. (2020). Sharing research data to comply with a journal policy: Experience of a first-time depositor. Hypothesis, 32(1). https://doi.org/10.18060/24038

Background Journals in health sciences increasingly require or recommend that authors deposit the data from their research in open repositories. The rationale for publicly available data is well understood but many researchers lack the time, knowledge, and skills to do it well, if at all. There are few descriptions of the pragmatic process a researcher author undertakes to complete the open data deposit in the literature.
When the author’s manuscript for a mixed methods study was accepted by a journal that required shared data as condition of publication, she proceeded to comply despite uncertainty with the process.
Purpose The purpose of this study is to describe the experience of an information science researcher and first-time data depositor to complete an open data deposit. The study illustrates the questions encountered and choices made in the process.
Methods To begin the data deposit process, the author found guidance from the accepting journal’s policy and rationale for its shared data requirement. A checklist of pragmatic steps from an open repository provide a framework that the author used to outline and organize the process. Process steps included organizing data files, preparing documentation, determining rights and licensing, and determining sharing and permissions. Choices and decisions included which data versions to share, how much data to share, repository choice, and file naming. Processes and decisions varied between the quantitative and qualitative data prepared.
Results The author deposited data in two datasets and documentation for each in Figshare open repository, thus meeting the journal policy requirements to deposit sufficient data and documentation to replicate the results reported in the journal article and also meeting the publication deadline to include a Data Availability Statement with the published article.
Conclusion This experience illustrated some practical data sharing issues faced by a librarian author seeking to comply with a journal data sharing policy requirement for publication of an accepted manuscript. Both novice data depositors and data librarians may find this individual experience useful for their own work and the advice they give to others.

Clinical Research Oriented Workshop (CROW) Meeting: February 11, 2021

 

Present:   Levi Bonnell, Justine Dee, Nancy Gell, Juvena Hitt, Charlie MacLean, Jen Oshita, Liliane Savard, Connie van Eeghen, Mariana Wingood (8)

 

1.                   Warm Up: The perils of grant-writing – check with Nancy G! Levi will soon be skiing the reservoir and circumnavigation of Camel’s Hump. Mariana is doing an adventure dinner in the beautiful outdoors benefitting those suffering domestic abuse.

2.                   Mariana: With Levi and Nancy, proposed project at CROW a few months ago to use secondary data through ACT to incorporate objective and subjective data, concentrating on the latter.  There’s no PA profiles for adults and added a second paper, this one, to address: what are older adults doing based on CHAMPS questionnaire.

a.       Intro: get the objectives together and focused.  Tighter connection between problem and need for profiles.  Reconsider the title.

b.       Data source: describe the subset used; why selected

c.       Population: protect personal health information in grouping ages

d.       Data categorization: novel, so needs more explanation.  Why were categories grouped the way they were? Consider a visual representation of categories.

e.       Comprehensive table of demographics

f.        Watch for limits on tables per journal requirements

g.       Bar charts represent valuable data and opportunities for programmatic goals

3.                   Next week:  TBA