Thursday, October 11, 2018

Clinical Research Oriented Workshop (CROW) Meeting: Oct 11, 2018


Present:   Levi Bonnell, Marianne Burke, Juvena Hitt, Kairn Kelley (GTM), Ben Littenberg, Gail Rose, Connie van Eeghen, Jen LaVoie, Paula Reynolds (GTM)

1.                   Warm Up: Introduced Paula Reynolds as an IBHPC patient partner
2.                   Jen Lavoie and Gail Rose -   Invited to share what IBHPC project learned about patient engagement and its impact on the project.  Audience includes funded researchers, researchers looking for funding, patients, family members, policy makers, and others.  This is Jen’s first poster; her mission is to extend PCORI’s message of patient-centered care and research.
a.       Instructions:  What do you like/not like?  What is clear/what not?  How would you do it differently
b.       What we like:
                                                   i.      Color
                                                 ii.      Last sentence in introduction: helpful, but raises question of how it leads to PCI, which was the presumed outcome of the poster on first read
                                               iii.      Conversational tone
                                               iv.      Favorite boxes are all to the right and small
                                                 v.      Pictures that showed what you did
c.       What to think about:
                                                   i.      How to reduce the feeling of “too much too take in”
                                                 ii.      Gradient background is hard to read; white on light green is also hard
                                               iii.      Lessons Learned are key but not readable; these should answer the question; consider putting in center
                                               iv.      Reduce picture content (but keep the smiling, laughing faces)
                                                 v.      Trim the sentences
                                               vi.      Reduce the acronyms
                                              vii.      Combine green “Focus Group” steps with yellow action steps for Affinity Diagram; include who is in the groups
                                            viii.      Identify the key message: what are you doing to make engagement effective?
                                                ix.      Can you include preliminary results in a poster?  (Gail to check with Abby.)  Or anticipate results, but don’t report them.
                                                 x.      Revise the title to focus on the key message
                                                xi.      Add objective of poster, with a brief explanation of IBHPC
3.                   Next week: Levi to decide
4.                   Future topics: TBD
Recorded by: CvE

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