Research in CTS (formerly CROW) Meeting: March 27, 2025

 Present:    Nancy Gell, Amanda Kennedy, Juvena Hitt, Jerry Landau, Ben Littenberg, Gail Rose, Liliane Savard, Connie van Eeghen (8)

1.    Warm Up: Hard to avoid current events and there is good work to do.  
2.    Follow up on Liliane’s presentation from last week.
a.    Liliane had her interview; it went well. Thanks from Liliane for all the support from the group last week.
b.    Liliane is continuing to move her dissertation full speed ahead. She has other options in the form of post-docs and scholarships to consider, both here and in Canada.
3.    Ben is working with Jen Oshita: analyzing the National Health Interview Survey (NHIS population weighted survey) re: disability
a.    Includes mortality data for 2009-2019; COVID years are scrambled and unfinished
b.    Studying relationship between presence of disability and mortality (known to have a positive correlation)
i.    Does cause of death have a relationship with disability?
c.    Liliane: availability of data set from China on medical errors and mortality
d.    Ben is learning about “decomposition models” which distributes the association of multiple variables with an outcome using secondary data.
e.    Liliane: possibility for linkage with suicidality
4.    Connie has an upcoming manuscript on opioid prescribing patterns for the Journal of Pain
a.    Next step is NIDA grant opportunity
b.    What are the other opportunities for funding, from corporate or private foundations?
5.    Jerry working on orals: having fun with it!
6.    Gail: past talk (3 weeks ago) for Integrative Medicine and Health on group health coaching conducted at UVM for past 3 years in Seattle.  New organization, developing its research abilities and excited about new ideas. Gail was actually not 100% friendly and nice in order to help participants do science well. (Yay, Gail!)
7.    As a group, keeping each other informed about work and opportunities is valuable and important.

Recorded by: CvE

Research in CTS (formerly CROW) Meeting: March 20, 2025

 

Present:   Nancy Gell, Amanda Kennedy, Jerry Landau, Ben Littenberg, Liliane Savard, Connie van Eeghen (10)

1.                   Warm Up: Opportunities for showing up and reflecting what is important

2.                   Presentation by Liliane as a recruitment/new hire for a DPT program with research focus

a.       Self-disclosure: not autistic

b.       Autism overview

                                                   i.      Double empathy problem: discomfort and barriers on both sides

c.       PCORI EW awards for two projects:

                                                   i.      Transition from pediatric to adult healthcare

                                                 ii.      Increasing capacity for autism research

d.       Explanation of the research process and outcomes for each project (used 2 websites to share)

                                                   i.      Transition project: literature review

1.       Careful work in identifying the different meanings of what was learned

2.       Identified gaps in the research: where to go next

                                                 ii.      Capacity project: two training programs

1.       Identified four key learning needs?

2.       Developed training collaboratively

a.       Participatory research

b.       Working together – creating a more welcoming space

e.       Dissertation project: motor learning

                                                   i.      What is known about autism

                                                 ii.      Few motor learning intervention trials, esp. with more impaired children

                                               iii.      Missing important details for reproducibility

                                               iv.      Priorities in her research: age appropriate, tolerable measurement method, instruction delivery, assessment of feasibility and acceptability

                                                 v.      Recruitment: feasibility, acceptability

                                               vi.      This study focused on internal vs external motivation on performance.

1.       A lot of variation in response to the intervention; no effect

2.       Need more support for motivation

                                              vii.      Next steps

1.       Motor learning

2.       First person report of motor control experiences

3.       Movement signatures

4.       Movement initiation: motor control and executive function

5.       Intervention: Transcranial Magnetic Stimulation, social motor groups (in addition to motor learning)

6.       Also: Gap between intention and action, plus many more issues, including design of communication designs, joint hypermobility, exercise intolerance, pain and addiction, role of physical activity, connection between autoimmune markers and neuroplasticity

3.                   Feedback

a.       Think about the 3 ways you plan to contribute to the research mission of the organization you are applying to

                                                   i.      What is your vision

                                                 ii.      How does your current work support that vision

                                               iii.      Next steps to support that vision: include plan to apply for grants and to publish

b.       What makes you (the investigator) helpful to the institution’s mission

                                                   i.      High level review of research and publications

                                                 ii.      Collaborators at the institution you would work with

                                               iii.      Funding sources

c.       What’s your story, make it the thread

                                                   i.      What are the three things that you want people to remember about your lead study

1.       Who you are and the work you do

2.       What your plan is to move your work forward

d.       Assume that technology will fail; keep all the content in a single PPT

e.       Let the CV cover the details; focus on what your want people to remember about you and your work

Recorded by: CvE