Present: Marianne Burke, Justine Dee, Nancy Gell, Juvena Hitt, Kairn
Kelley, Mike Lamantia, Ben Littenberg, Adam Sprouse-Blum, Connie van Eeghen
Start Up: Introductions all around.
Mike Lamantia is an MD with an interest in geriatrics and, of course,
research.
1.
Discussion: Justine Dee shared her focus
group script and asked for feedback.
a. Justine has a
background with graded motor imagery, which is frequently used to treat lower
back pain. Justine started working with
this population (refugees) about 4 years ago and looking for better
modalities. She has 3-5 cases of GMI and
it appears to make a difference. She has
identified cultural brokers in the community and agencies to support
identifying and accommodating cultural barriers for refugees.
b. Research
question: What is the most efficacious and effective treatment for refugees who
have suffered from traumatic injuries.
Three options are: pain education, graded motor imagery (GMI) and exercise.
i.
Consider including domestic survivors of trauma and abuse
c. Purpose:
patient-centered design for research question to develop a standardized,
effective intervention that works for the therapists and the patients. Information needed:
i.
Identification of the cultural context of pain
ii.
Definitions of the interventions being explored
iii.
Patients’ experience of the care offered/received to date?
iv.
Patients’ knowledge of what worked and didn’t work, or what helped
and what didn’t?
d. The focus group
will include those who are not familiar to the researcher, but consider
starting with interviews with those who are familiar, as they may help set the
cultural framework.
i.
Debrief past patients one-on-one; get a qualitative impression
regarding effectiveness.
ii.
Write up case reports/publish; prepare for next round of
studies.
e. Consider a
review of the literature, especially if there has been a gap in time since the
last systematic review.
f.
Keep in mind the issues related to patients’ rights, especially
the possibility of re-awakening traumatic issues from past experiences, and
address them at the start of the IRB submission.
g. Patient-centered
research design
i.
How do patients (segmented by culture) talk about what is
important about their pain?
ii.
How do they talk about what is important about addressing the
pain?
h. Data collection
may be based on the result of individual care sessions, which could be
conducted by the provider/researcher and/or students. Ideally, conduct 8-12 interviews until
saturation is reached.
i.
Next steps:
i.
Talk with Connecting Cultures/brokers/community health team
workers who go into homes; determine available patients to interview; consider
partnering with providers as co-investigators
ii.
Describe intervention in appropriate detail
iii.
Make plan for data collection process and follow up with advisor
(Ben)
2.
Plan for Next Semester: Connie will consult with Sylvie on Fall
Schedule
3.
Next Workshop Meeting(s): Fridays, 1:00 p.m.
– 2:00 p.m., at Given
Courtyard South Level 4 until end of Aug.
a.
July 22: (no
Ben, Gail, Marianne, Mike) Kairn – what Kairn wished she had known about doing
a literature review when she started it 4 years ago
b.
July 29: (no
Ben) Nancy – Clinical Trial sessions
c.
Aug 5:
d.
Aug 12: Mike
Lamantia’s draft editorial on functional decline in older adults after ED visit
e.
Aug 19:
Marianne’s data cleaning process
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