Friday, July 15, 2016

Clinical Research Oriented Workshop (CROW) Meeting: July 15, 2016

Present:   Marianne Burke, Justine Dee, Nancy Gell, Juvena Hitt, Kairn Kelley, Mike Lamantia, Ben Littenberg, Adam Sprouse-Blum, Connie van Eeghen

Start Up: Introductions all around.  Mike Lamantia is an MD with an interest in geriatrics and, of course, research.   

1.                   Discussion: Justine Dee shared her focus group script and asked for feedback.
a.       Justine has a background with graded motor imagery, which is frequently used to treat lower back pain.  Justine started working with this population (refugees) about 4 years ago and looking for better modalities.  She has 3-5 cases of GMI and it appears to make a difference.  She has identified cultural brokers in the community and agencies to support identifying and accommodating cultural barriers for refugees.
b.       Research question: What is the most efficacious and effective treatment for refugees who have suffered from traumatic injuries.  Three options are: pain education, graded motor imagery (GMI) and exercise.
                                                   i.      Consider including domestic survivors of trauma and abuse
c.       Purpose: patient-centered design for research question to develop a standardized, effective intervention that works for the therapists and the patients.  Information needed:
                                                   i.      Identification of the cultural context of pain
                                                 ii.      Definitions of the interventions being explored
                                               iii.      Patients’ experience of the care offered/received to date?
                                               iv.      Patients’ knowledge of what worked and didn’t work, or what helped and what didn’t?
d.       The focus group will include those who are not familiar to the researcher, but consider starting with interviews with those who are familiar, as they may help set the cultural framework.
                                                   i.      Debrief past patients one-on-one; get a qualitative impression regarding effectiveness.
                                                 ii.      Write up case reports/publish; prepare for next round of studies. 
e.       Consider a review of the literature, especially if there has been a gap in time since the last systematic review.
f.        Keep in mind the issues related to patients’ rights, especially the possibility of re-awakening traumatic issues from past experiences, and address them at the start of the IRB submission.
g.       Patient-centered research design
                                                   i.      How do patients (segmented by culture) talk about what is important about their pain?
                                                 ii.      How do they talk about what is important about addressing the pain?
h.       Data collection may be based on the result of individual care sessions, which could be conducted by the provider/researcher and/or students.  Ideally, conduct 8-12 interviews until saturation is reached.
i.         Next steps:
                                                   i.      Talk with Connecting Cultures/brokers/community health team workers who go into homes; determine available patients to interview; consider partnering with providers as co-investigators
                                                 ii.      Describe intervention in appropriate detail
                                               iii.      Make plan for data collection process and follow up with advisor (Ben)

2.                   Plan for Next Semester: Connie will consult with Sylvie on Fall Schedule

3.                   Next Workshop Meeting(s): Fridays, 1:00 p.m. – 2:00 p.m., at Given Courtyard South Level 4 until end of Aug.   
a.       July 22: (no Ben, Gail, Marianne, Mike) Kairn – what Kairn wished she had known about doing a literature review when she started it 4 years ago
b.       July 29: (no Ben) Nancy – Clinical Trial sessions
c.       Aug 5:
d.       Aug 12: Mike Lamantia’s draft editorial on functional decline in older adults after ED visit
e.       Aug 19: Marianne’s data cleaning process

Recorder: Connie van Eeghen

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