Clinical Research Oriented Workshop (CROW) Meeting: July 8, 2016

Present:   Marianne Burke, Justine Dee, Nancy Gell, Juvena Hitt, Ben Littenberg, Jen Oshito, Adam Sprouse-Blum, Connie van Eeghen

Start Up: Other interesting work on rehab, muscular and skeletal tissues, cancer, and x-ray reports as predictive of falls

1.                   Discussion: Nancy Gell’s first draft manuscript on participant perspectives from an intervention to support physical activity maintenance in cancer survivors.  She is looking for overall feedback on presentation of Methods and Results (what is confusing, missing), title edits/suggestions, formatting for Results to present the information cohesively.

a.       Add author, date, page numbers, and line numbers to support discussion

b.       Clarify language that has specific meaning, e.g. accountability means “being held accountable by an outside party”.  Also be parsimonious and direct, esp. second and last paragraphs of Intro.

c.       Add more to intro about technology, beyond reference to mobile health apps

d.       Start with what is exciting about this paper: rationale – how this app overcomes this barrier in this population.  Center title on this, with “novel”

e.       Identify the research question and the design

f.        Methods: re-order the paragraphs to follow formal report

g.       Intervention: break out table to shorten sentence

h.       Exit interview section is the data collection effort

i.         Results re: Convenience of Technology – two ideas combined into one; data only support one (texting technology).  Does “self-monitoring” effect apply to FitBits?

j.         Conclusions will be related to the value placed on both independence in health maintenance and need for connection and contact with others to accomplish that maintenance. 

                                                   i.      “We know that at the end of the expensive, intensive programs, people left to their own have high failure rates” – Intro.  This technology is engaging and automatic.

                                                 ii.      Concern in literature about privacy; patient’s willingness to share data and “being watched” indicated that this was not a barrier, but a facilitator.  This directly affects the theme of accountability. 

k.       Discussion: include “privacy.” 

2.                   Next Workshop Meeting(s): Fridays, 1:00 p.m. – 2:00 p.m., at Given Courtyard South Level 4 until end of Aug.   

a.       July 15: (no Gail) Justine – preliminary stages of research, with educational training module and focus group

b.       July 22: (no Ben, no Gail)

c.       July 29: (no Ben)

Recorder: Connie van Eeghen