Clinical Research Oriented Workshop (CROW) Meeting: August 8, 2019

Present:   Ben Littenberg, Jen Oshita, Adam Sprouse Blum, Connie van Eeghen

1.                   Warm Up: What U.S. state does not have a rectangular state flag?  (Ohio)

2.                   Poster on Familial Diplegic Migraine Poster – Adam

a.       Adam is presenting at the International Headache Congress in Dublin in the fall; goal is to impress Arne, with a related project who works in Britain

b.       Poster size will be 4 feet high by about 2 feet wide – print it out to test legibility

c.       Plan is to talk about the three figures

d.       Story:

                                                   i.      Weakness started on one side of the body, progressing, like a rising level of water, up to the head, then cross to the other side of the body, and work down

                                                 ii.      Attendees will understand the context and illustrations

                                               iii.      6 of 9 people were missing wisdom teeth or had persistence of primary teeth in adult hood

e.       Trim down 50% of the text

                                                   i.      Introduction, reconsider

                                                 ii.      Methods, e.g. who did the genotyping, Thomsen questions

                                               iii.      Remove references

                                               iv.      Results, second bullet point on pathogenic mutation – does it help your audience?  Switch bullets 2 and 3.  Remove bullet 5. Remove “78%.”  Proportion of attacks that were diplegic were variable.

                                                 v.      Discussion: delete first bullet.  And two. Highlight the tension between bullets 3 and 4.  Spread is reminiscent of migraine aura but the bilateral aspect suggests a different bio mechanism. 

f.        Enhance

                                                   i.      Add color to the family tree for those member interviewed

                                                 ii.      Add heading to pictures with take-aways, e.g. 7 of these cases progressed across the mid-line

                                               iii.      Add color to text box borders, title (green or cerulean blue)

g.       Include a separate handout with the poster/references

h.       Ben’s prediction: People will be interested: don’t expect that this is talking to Arne, it is talking to the unknown unknown

3.                   Future sessions:  

a.       8/15 Jen Oshita will present her background on a paper (lit review). More to come from her beforehand.

b.       8/22: Connie- Pragmatic Trial Complexity Analysis

Recorded by: CvE